I seriously couldn't imagine. And I really don't want to, to be honest. I can't even stand when my little one has a diaper rash. So the kind of faith, love, and strength these families have, is beyond what I can comprehend.
And typically, I would try to avoid reading things that make my heart hurt, but I felt this could not go unmentioned. These children need to be prayed for. These mommies and daddies need to know that there are people around this world pulling together strength for when they feel like they don't have any! And they need people to believe along side them that their child, although I don't believe God predestined them to have this disease, will be born with a BEAUTIFUL and PERFECT purpose. We need to believe along with them, that there WILL be GOOD even in the HARD.
I know there are more children and families not listed here... these are the three I found and read about and prayed over. I strongly suggest for you to do the same!
Those to Pray For:
Those to Remember: